TheO Smartball

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The TheO Smartball is such a great idea! I could see this making a great Christmas gift, (cuz face it-it is ONLY 13.5 weeks until Christmas!) birthday gift, classroom tool, or therapy tool for children with disabilities or who need special therapies. I actually use this for multiple reasons. I use it with my autistic son and my home schooling daughter. (3 and 5)  TheO Smartball comes quickly and with a free carrying bag (worth $12.99). It can fit devices that are 4.75″ long x 2.25″ wide such as the Iphone or Galaxy s4 mini or you can pay just $10 more and get the TheO Smartball XL that fits phones of all sizes. (As large as the Galaxy S5 and the NEW Iphone 6)

When you purchase TheO Smartball, it doesn’t end when the ball gets here. Once you get the Smartball,  (or even before it gets here) there are eight apps that are completely free (right now there is 12 for a limited time!!) You can find them both in the iTunes Store and also Google Play. You can find out more by going to  http://www.physicalapps.com.

The apps range from Animals, Colors, and Textures to Objects, States and Capitols, ABC’s and 123’s. (There are a TON of apps!) The best part is when my kids are playing, they are having a great time and learning, and they don’t even know it. (the learning part!) My son was home for a few weeks soon after I received TheO Smartball and I used it with him the whole time he was home. The results have been amazing. He left school not talking to them at all, and although he isn’t so keen on talking to his teachers, he is consistently talking to his  Speech Therapist and also making requests and interacting at home much more. He absolutely loves playing hot potato and bowling and he also loves the Musical Instruments App.

My daughter is learning to read so we use the ABC app (to learn letter sounds) and she is also learning addition and subtraction so she is using the Math Flash App ($4.99  at http://www.physicalapps.com) She also absolutely loves the bowling and Hot potato and I can see her improving in her phonics and math skills and we have also started playing together with the Word Teasers app. It is a fun way to interact with each other and it gets us spending a lot of time together.  All of the apps have a way of entertaining kids and are definitely a great gift for any occasion.  I would definitely recommend the TheO Smartball to any teacher, home school parent, or parent who wants a fun way to work on their child’s learning skills in math, phonics, interaction, and music. (it does so much!) It is also the perfect tool for therapists or those with children who are autistic or have a learning disability.

 

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Product Description:

TheO SmartBall – For kids pre-school to 5th grade – a parent’s dream!

Active kids learn more and retain more of what they learn. With TheO SmartBall, kids learn while they play.

TheO SmartBall is a soft foam ball that uses revolutionary technology and your smart device to entertain and educate your kids. Our Apps offer a variety of games that get kids engaged mentally and have fun physically.

Download one of our entertaining and educational apps to your smart device, insert your device into TheO SmartBall (a tutorial on our website shows how), and then toss, roll, or shake the ball to make learning fun.

Physical Apps offers 8 free apps to get started. You and your winner can download them from the iTunes or Google Play. See the full line up at: http://physicalapps.com/apps/

Download one of our free apps to your electronic device, and follow the instructions for using TheO SmartBall. And let the fun begin!

TheO™ SmartBall’s revolutionary technology has combined physical activity, learning and fun into one dynamic experience. Kids love all the incredible Apps! Simply, download one of our fun-filled apps from the iTunes App Store or Google Play. Insert your Apple or Android device into the TheO™ SmartBall, and let the fun begin. You will be amazed at how much fun your kids will have interacting with TheO™ SmartBall.

“Like” our Facebook page: http://www.facebook.com/PhysicalApps

Follow us in Twitter @PhysicalApps

 

Where to Purchase:

http://physicalapps.com/

 

 

 

I received one or more of the products mentioned above for free using Tomoson.com. Regardless, I only recommend products or services I use personally and believe will be good for my readers.

Lots and Lots of Trains Review and Giveaway

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Lots and Lots of Trains is the perfect Dvd set for any child, teen, or adult who loves trains. With hours  and 300 shots (plus) worth of trains, it is bound to please! My son has absolutely LOVED these Dvds! He begs to watch them, and they calm him down when he is having a sensory day and needs something with music and one of his favorite things to focus his energy and bring him back down.

He can watch these dvd’s over and over (if I let him) and the music is fast paced, yet classic and calm enough that it doesn’t rile him up or cause his brain to “over load” so to speak. And my other kids love these Dvds too! It is nice to have something in the house they all agree on and will watch together without fighting or wanting to disagree with each other.

The additional Cd is great too. It isn’t very long, but it has every song played on the Lots & Lots of Trains Dvds and the kids like to listen to it on shorter car rides when we go places.  This would make a great movie for train lovers of any age, children, or an autistic child-since for some reason the trains seem to calm them. (at least my son!)

You can read some reviews and product descriptions and find where to buy these awesome Train Dvd’s below! You can also enter to win your own! (look further to see how! )

Product Description:

GREAT FOR KID’S WITH AUTISM – SEE PARENT COMMENT BELOW!

IF YOU LOVE TRAINS WE GUARANTEE YOU’LL LOVE THESE EXCITING NEW MUSIC DVD’S!

Great for Train Themed Kids Birthday Parties, Playtime, Classroom Use!

ADULTS LOVE THEM TOO! THOUSANDS ALREADY SOLD!

NO OTHER VIDEOS HAVE AS MANY SHOTS OF TRAINS AND AS MUCH GREAT MUSIC OR SOUND EFFECTS AS THESE THREE AWARD-WINNING DVDs.

LIMITED TIME OFFER – FREE BONUS AUDIO CD WITH SONGS FROM THE DVD BY AWARD-WINNING MUSICIAN, JAMES COFFEY!

DON’T WAIT – ORDER YOURS TODAY – MONEY BACK GUARANTEE!

NORMAL DELIVERY 2 – 3 WEEKS VIA US MAIL – RUSH DELIVERY AVAILABLE IN 3 – 5 DAYS VIA PRIORITY MAIL!

COLLECT ALL THE DVDS IN THE LOTS AND LOTS OF SERIES INCLUDING FIRE TRUCKS, BIG TRUCKS, MONSTER TRUCKS, JETS and PLANRS, TRAINS VOLUME 3, BIG TRAINS AND PLAYFUL PENGUINS!

“SMOKIN’ STEAM & DIESEL” Volume 1

It’s Tons of Train Fun for Everyone!!”

No matter what your age, if you love trains, we guarantee you’ll love this new DVD! It’s the biggest collection of trains ever recorded on one program! THERE’S OVER 300 SHOTS OF TRAINS ON THIS DVD!

You’ll see big trains, little trains, steam, diesel, freight and passenger trains, even trains from around the world! There’s old trains, new trains, fast trains, slow trains, city, country and mountain trains, even trains that blow through snow! Plus, garden trains, scenic trains, electric, monorail and long forgotten trains.

And, there’s even toy trains, trolley trains and lots of “gee whiz golly” trains; they’re all a part of this exciting collection of the greatest trains in the world!

SPECIAL BONUS FEATURES INCLUDE: The Lumberjack Special and Lots and Lots of Toy Trains!

Spectacular close-up camera footage combined with award-winning sing-a-long song music by James Coffey and lots of real-life sounds make the thrilling action of these mighty machines a favorite among young and old alike!

A PARENT’S CHOICE and KID’S FIRST AWARD WINNER!

Collect the entire series of Lots and Lots of DVD’s, CDs and Books!

LENGTH: 45 Minutes REGULAR PRICE $19.95

ITs NON-STOP “THUNDER ON THE TRACKS!” Volume 2

If you love trains, get ready for more of the most exciting trains you’ll ever see in Volume 2 of “Lots and Lots of Trains”! Our crews have scouted the globe to bring you the biggest variety of live-action trains imaginable!

In this DVD volume, you’ll see so many trains we can hardly count them all winding through mountains, climbing steep grades, gliding over trestles, hauling, pulling, loading and much, much more!

You’ll hear the blast of the steam whistles, thrill to the blaring of the diesel horns, and watch in awe as these titans of the tracks thunder on by! Feel the heat, smell the smoke and cover your ears because our camera crews take you up-close and right where all the action is! It’s an unforgettable rail experience you’ll want to watch again and again!

SPECIAL BONUS FEATURES INCLUDE: The Lumberjack Special and Lots and Lots of Toy Trains!

Spectacular close-up camera footage combined with award-winning music by James Coffey and lots of real-life sounds make the thrilling action of these mighty machines a favorite among young and old alike!

A PARENT’S CHOICE and KID’S FIRST AWARD WINNER!

Collect the entire series of “Lots and Lots of” DVD’s, CD’s and Books!

LENGTH: 45 Minutes REGULAR PRICE $14.95 each (see Amazon)

ROARING DOWN THE RAILS!! Volume 3

BRAND NEW RELEASE – NEVER BEFORE SEEN FOOTAGE! 90 MINUTES OF RAILROAD ACTION and MUSIC! Here they come, bigger, better, faster, closer and louder, than ever before, its tons of train fun for everyone in Volume 3 of Lots & Lots of Trains! Its our best collection of thundering steam and diesel action ever, guaranteed!

In this volume youll get lots more – more unusual trains from around the world – more live steam and diesel action of Americas most popular trains, more close-up shots and sounds of thundering trains rolling on by and more great railroad songs from Award-Winning musician James Coffey including, Counting Those Railroad Cars, The Wheels on the Train Go Round and Round, and many more!

Youll see the fastest and most colorful trains in the world, plus electric, tram and trolley trains so many trains you wont believe all the non-stop rail action! Youll ride along with the engineer and see the views from the cab , take in magnificent scenery along the way – our cameras are all over these trains!

Plus, our Bonus Section includes Coal Loaders, The TOY Train Cavalcade, and a special Directors Cut! Its 90 minutes of roaring railroad fun for everyone!

Dont miss a single second of this unforgettable rail experience youll want to watch again and again! Everyone loves, Lots & Lots of Trains and you will too! This video program and all the Lots and Lots of DVDs are recommended for autistic children as well!

LENGTH: 90 MINUTES REGULAR PRICE $14.95 EACH (as sold on Amazon)

Collect the entire series of Lots and Lots of DVDs including Fire Trucks, Penguins, Trucks, and more!

SEE WHAT OUR HAPPY CUSTOMERS

HAVE TO SAY!

Kids who have autism love this movie, too!

My son has autism and is 9 years old. This movie has been one of his absolute favorites since he was about 4 years old. We’ve gone through 2 copies of it due to the fact that he watches it almost daily. When his last copy recently broke due to the fact that the tape was just worn out, he cried for two days! We promised him he would get a new copy for his birthday this month, and he can’t wait. Lots of kids who have autism love trains for some reason, and they can see lots of them in this movie. He likes to hum the tune from the movie even when he is not watching it. His great-grandfather who retired from the railroad liked the movie so much that he bought himself a copy to watch when we weren’t visiting him! We have many train videos, but this is his favorite, especially Volume 2. I would recommend this for anyone who loves trains! Great for toddlers!

I bought this video because my 3 year old loves trains. This video is just trains and a little music. My son asks for “Lots and Lots of Trains” on a daily basis. He also has “There Goes a Train” which he likes, but that is for an older child, in my opinion. If you have a toddler who loves trains, then he or she will love this movie!

A Winner With the Kids! Thumbs Up, Way Up! Reviewer: A viewer This video with no narration, was an instant hit with my 3-yr. old train fanatic! And it’s something parents won’t mind sitting through. Highly recommended. I think we’ll get the Vol. 2 as a result of watching Vol. 1.

No-nonsense video Reviewer: A viewer This video contains only trains – none of the hokey actors and dialog that come on so many videos geared to children. Parents will find it interesting to sit through!

Kids love it! Reviewer: A viewer One of the best train videos we’ve ever owned. Our son watches this video more than any other train video. Won’t go to sleep without it!

Award-Winner!Reviewer: A viewer This wonderful video has received a “Kid’s First” endorsement from the “Coalition for Children’s Media” and approval from “Parent’s Choice”!

Very Happy Parent

Reviewer: A viewer After seeing this video advertised on TV over and over again I am happy to finally find it here on Amazon. It is absolutely the greatest train video we own. The kids just love it – they sing the theme song over and over again – it’s quickly moving and keeps the kids glued to the TV. There is also a volume 2 of this tape which has even more trains on it. High on the appeal factor and low on the annoyance factor!

Easily one of the best videos my son has. He LOVES it and watches it several times a week, and due to the lack of hokey narration, jokes, etc. I don’t mind even when he wants to watch it twice in a row. When I first heard it was all music and no storyline whatsoever, I wasn’t sure what to think, but it’s actually put together very nicely, and what’s more the music itself is actually VERY appealing – better than some CDs I’ve actually bought for the music!

Wow…

A cinematic tour-de-force. A mix of minimalism and the overpowering grandeur of the train.

Perhaps best of all, no purple dinosaur.

My 2 year old son loves it.

They’re the ultimate train dvds for kids!  As seen on TV this 3 pack set includes a Free Audio CD of train songs.  Each DVD is jam-packed with hundreds shots of different kinds of trains in action set to the award-winning sing-a-long music of children’s musician James Coffey.

You’ll see big trains, little trains, steam, diesel, freight and passenger trains, even trains from around the world! There’s old trains, new trains, fast trains, slow trains, city, country and mountain trains, even trains that go through snow! Plus, garden trains, scenic trains, electric, monorail and long forgotten trains.

And, there’s even toy trains, trolley trains and lots of “gee whiz golly” trains; they’re all a part of this exciting collection of the greatest trains in the world!

A PARENT’S CHOICE and KID’S FIRST AWARD WINNER!

Regular Price $59.85  Special Website Price $24.95!

 

Where to Buy:

http://www.marshallpublishinginc.com/lots-and-lots-of-trains-3-dvd-set–bonus-audio-cd-as-seen-on-t3.html#.u3gzwyjlj8s

 

Win your own Lots & Lots of Trains Dvd Set with Audio Cd bonus: ( follow the link below to enter)

https://sanyadalove.wordpress.com/2014/06/25/lots-and-lots-of-trains-giveaway/

 

I received one or more of the products mentioned above for free using Tomoson.com. Regardless, I only recommend products or services I use personally and believe will be good for my readers.

Hidden Places

Please read our story and consider visiting http://www.thepuzzlingpiece.com to help!

Happy Homemaker

The phrase “hidden places of my mind” has really changed meaning for me recently.  As many of you know, I love to talk. I can talk about shopping, politics, the Bible and Christianity, hunting/fishing, or well, anything really. The scope of my interests is pretty wide. (I even have recently delved into the world of video gaming…) But, there are things I don’t talk a whole lot about. At least not recently.

Many who have taken the time to get to know me (and some who haven’t) know my kids are one of the biggest things in my life. I live, eat, sleep, and breath my kids. (although sometimes a break is in order) You know I talk non stop about them. I do admit sometimes it isn’t as easy at times than others-but there are things I don’t talk about. I know, I know, I shouldn’t keep things to…

View original post 1,914 more words

Hidden Places

 

The phrase “hidden places of my mind” has really changed meaning for me recently.  As many of you know, I love to talk. I can talk about shopping, politics, the Bible and Christianity, hunting/fishing, or well, anything really. The scope of my interests is pretty wide. (I even have recently delved into the world of video gaming…) But, there are things I don’t talk a whole lot about. At least not recently.

Many who have taken the time to get to know me (and some who haven’t) know my kids are one of the biggest things in my life. I live, eat, sleep, and breath my kids. (although sometimes a break is in order) You know I talk non stop about them. I do admit sometimes it isn’t as easy at times than others-but there are things I don’t talk about. I know, I know, I shouldn’t keep things to myself. And yes, there are those of you who do know a little of what is happening. But the key word here is, little.

It is so much easier for me to keep it to myself. I don’t have to worry about what others are thinking; because sadly, I have already gotten the “I’m so sorry” response-which makes it feel worse because pity doesn’t really feel that good. I have gotten the-“well what did you do to him response”, and anyone who knows the facts of this situation or any like it know, I didn’t do anything to cause this-it just happened. I have even gotten the silent treatment, and others who acted like my son was a problem child and cause to be rude and mean to him and myself.

 

 

I have been so hidden in my own world that many don’t even have a clue what is going on. But I can’t afford to be silent anymore. My son is at stake. His relationships, his treatment, and his life. If I remain silent, I may never hear the words “I love you” come from his lips. I may never hear more than the buzz of him playing, his screams or the grunts of frustration.

E-man (use of nickname due to public forum) has been going through a lot. Actually, he has been going through a lot for quite a while. I have been noticing things, a little at a time since he was about a year and a half.  Not knowing if it was anything, I just let it go for a couple of months. I did take the time to mention my concerns to his pediatrician, but at his recommendation, I waited until his second birthday to say anything.

At two,  having no idea what my options were or where to turn, I talked to his doctor once again.  At the time, it was mostly emotional. He screamed at anything. He was easy to upset, and still hadn’t talked at all. It has been honestly been a fight since. At that time, because it was pretty difficult to say what level he was at due to his lack of speech,  it was written off as either an inability to hear, or he was a slow learner.

I left that appointment, unsatisfied and extremely skeptical that he was just a “slow learner” or developing “at his own pace.” I made calls. I called people I knew had gone through this, I called agencies, schools, other doctors. (not that other docs could do much…) I even called my sons Pediatrician over, and over, and over again. Although I am almost ashamed to admit this, I even made E-man the topic of discussion at my other kids’ appointments. (they were healthy-I promise! 😉 )

 

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After a year of asking over and over again, and coping, fighting, comforting, and trying to understand my consistently angry now three year old, I HAD to do something. At his next wellness visit, I made a point to once again say something to his pediatrician. After about a ten minute exchange (after he turned me down to refer him for testing once again) he finally agreed to write up a referral to have his development tested to see where he was.

Let me point out right now, this entire year I went without knowing I had the right to get him tested any time I wanted to without a referral from a doctor or going through the school system. Though, once he was three, it definitely moved much faster than I had anticipated.  What we found was actually a surprise.

Sure, I knew my son had delays, but I thought a few months of therapy, and he’d be good. Right? Well, I was WRONG.  His testing went so terribly, the therapists who ran his tests avoided even placing his numbers in the paperwork out of fear it would make him look worse than his potential. (because, we all at least agree he has TONS of that!) He showed between 10-24 months behind in both his OT and Speech evaluations, and sadly, the people who make the final decisions on his therapies and school recommendations decided it was best to tell me it was one of the worst, if not the worst case of delay they have seen in a long time.

 

 

So, after much deliberation and weighing pros and cons, we sent our precious baby to preschool where he not only does class with his peers, but has an hour of OT a week,  two hours of speech, and at the start of the summer session, he will be doing an hour of PT on top of it all. Life as we know it, is no longer “normal.”

Let me explain, with the tantrums, grunting, lack of speaking (he spoke his first real words at about three) and mood swings, life has not been what others consider “normal” in a long time. To me, my kids, my husband, and our closest family (grandparents) this is normal. We live each day with these things and our definition of normal, has been forever altered to mean something other than what others would necessarily consider “normal.”  But even this, has changed.

We get up every day at quarter to seven and guess at what time his bus is going to show up. I try to make sure he gets a snack or small breakfast before school and wave him off as he goes to school. He gets home at 12:30 each day, ready to be home, but still longing for school. We have lunch, and then the daily fight begins. We don’t have nap time, per say. I would love if the kids napped, but I have resigned to quiet time instead. Even then, it’s screams for more food or because I changed the tv channel (when I would prefer he played quietly in his room during that time), or just being overall, quite touchy.

I can’t hold him anymore. He is very affectionate, but he has to approach me or it is an immediate scream fest.  He has started to talk some, but only at home and sometimes with the grandparents, but he has never talked in school outside of one time when he asked another child to blow bubbles and stomped on them excitedly. He has needs I don’t even understand and there are things he has yet to learn before kindergarten that I don’t even know if he will learn, or if he’ll even be talking enough by then to effectively participate. Potty training has been a two year process almost at this point. My finest moment was this past week when he told me he had to go while we were out and finally didn’t scream ecstatically because he was so scared of the “big potty”.

 

 

Then there are days when I see the little boy inside of him sprouting-but incapable of coming out. He still doesn’t say much, but he plays with his siblings, snuggles, and at least points to what he wants and smiles more. Those are the good days-I can see a glimpse of who could become in the future. Him, too young to dream for himself, unknowingly allows me to do all his dreaming for him for now.

We just had a CPSE meeting for him last week. I haven’t said anything about it to anyone, except he gets to go to summer school to continue therapy and play with his new friends. (those that will be there)  They expect another full year of the most intensive therapy they can get him and though they don’t know the full story, I keep getting asked why they didn’t see him sooner. If only they knew.

They still recommend an eye test-we are working on that. But they also recommend he get officially tested for Autism. Although they and I both wish differently, all evidence is pointing towards Autism. This in itself is another fight. I have already been turned down for the referral for the Neurological testing he needs twice-and I can see possibly having to switch doctors just to get the referral we need for insurance to cover it. His testing shows him very likely autistic, falling in the bottom 5% of all kids tested, though also showing much promise to be up there with those they test as “normal”.   He needs orthodics for flat feet and we hope that as we push for that referral we can get that neuro referral as well. Our fight is not over. We don’t want to fight, but for our E-man, we will fight as hard as we need to get him whatever he needs.

 

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That is where The Puzzling Piece comes in. In E-man’s speech therapy, they have been using the Ipad. They also have been using it during the breakfast part of the day for him to say “more” and a few other words. As much as it is helping him communicate in school, we do not have the money to afford an Ipad for him to use at home so that he can use the same technology there to communicate with us.

The Puzzling Piece has been kind enough to start an Ipad challenge a few years ago to help families who could not necessarily afford an Ipad for their child get one for absolutely free.  All we have to do is sell 60 pieces of The Puzzling Piece jewelry (found in the picture above) and as soon as the last piece is sold they will purchase and send E-man an Ipad. The apps and technology offered by the Ipad makes this an non-expendable  tool for anyone to use with a child with delays or disabilities.

What I am asking is for five or six friends to share our story with their friends and find five or six people willing to buy one or two pieces of jewelry. The faster we can sell the 60 pieces, the sooner E-man can get the technology he needs to communicate with us better and be the happy, cuddly little boy he is on days when he is “connecting” better.

I am also asking that if you read this post and feel led to help, please, please, please go to:

http://thepuzzlingpiece.com and click on products then follow the tab to the “Ipad Challenge” jewelry. Check it out and get something that speaks to you and when you choose the piece (s) just enter my name (Sarah Samson) in the Challengers box so they know who to give credit to. The money they make goes to Autism Awareness Non Profit organizations and as soon as 60 pieces are sold they immediately purchase the Ipad and send it straight to E-man. For ease of use, I will put step by step directions below.

How to order online:

Go to www.thepuzzlingpiece.com.

Click on products

Click on iPad challenge pieces

Click on the piece you would like

Pick a drop down box, no extra cost.

Then add the challenger’s first and last name in the challenger box.

Click another photo if you would like more than one piece.

Please, Help us help our son reach his fullest potential and live the fullest life possible. The first step we can take (without referrals/insurance) is to get him this Ipad to help him communicate with us.

We, and E-man both thank you in advance for all your help!

God Bless,

Sarah

 

 

Living with a Child with Disabilities

 

People wonder why I’ve become so disconnected. Or why I seem stressed out. How I “don’t work” yet seem to always be with excuse to stay in. They even wonder why I have avoided specific groups of people.

Well, here it is. I home school, cook, clean, train our puppy, take my kids to appointments and activities, I also have a blog I post to regularly, and a freebie page I offer, because to me-much has been given to me, so I should share that with others. It is my way of giving back even though right now I don’t get much personal contact outside my home or go out much.

Then, when no one is watching, I handle break downs, screaming fits, sensory issues, work with speech delays, explain to my children why even though a toy hasn’t been played with in hours it can’t be moved, potty train a child who after a year still doesn’t get it, try to decipher what is wanted with a few grunts or whines, and that is all with just one child. We aren’t even covering the fact I have two other children who don’t necessarily require, but would like the same amount of personal time put in with them.

It isn’t easy to go out with a child who doesn’t understand crowds, or can’t interact with his peers the way they interact with each other. It isn’t cut and dry taking a child out in public who does well often, and melts down just as much-if not while out, then when we get home. It isn’t a piece of cake to try and join a group and have them judge you because your child has what they call “behavior issues” when really it’s a disconnect in understanding right from wrong-or even sensory at times- and I’m doing the best I can.

There are those I don’t wish to be disconnected to-and I try not to be-but we all have lives and some have more obstacles than others. I work hard on a daily basis to reach out to people, whether they respond or not. Face it-it didn’t take long to become “disconnected” when I am home all day, almost every day, and when I needed my so-called friends most they scorned me-and more importantly-they scorned MY SON.

On to avoiding specific groups-I have learned you are who you hang out with, whether you intend to be that way or not, eventually you will reflect who you are with most often. When I see people who once claimed to be friends hanging out with people who have no problem talking trash about their family, let alone their friends, when they weren’t around-it bothers me. I don’t want to associate with that. When it is okay for one friend to scorn another and those that hang out with them don’t stand up for the one they are judging-I have a problem with that. Especially when they knew what was going on all along.

Lets not even touch the fact I was willing to overlook a multitude of past wrong doings that to me were the past and didn’t matter, but they couldn’t even take pity on a boy with learning disabilities and insulted me as a parent while attacking my child. Yes, he has issues-deal with it. He’s getting the help he needs and while I’m dealing with his ups and downs and getting him help-I am doing it alone because he was an inconvenience to people I once believed were my friends. It is not only easier, but better for me to focus on my son more than what my so-called friends are say about me when they think I won’t find out.  He is more important than any “petty” friendship.

 

I don’t want to discredit the friends I do have-I have some amazing friends, and even though we can’t talk all the time, and some have no idea what I am truly going through, I know they love me and vise versa. It isn’t all bad. And I would urge those who assume I’ve become “anti-social” to consider that I am not in fact anti-social, but have decided to find friends who will love me and my children through thick and thin opposed to those who see me struggle and assume I’m a bad parent because of it.

They say in hard times you find out who your real friends are. I have to say I was pretty surprised about who a few of them were, but also found they were the ones I should have relied on in the first place and I am proud to call them “friend.” I don’t need to be a social bee or little-miss-popularity to be rich. And I am truly rich. To the true friends out there-I love you and thank you for all you do for us. The texts, occasional visits, the understanding and occasional nights out. You are the best friends a girl could ask for!

The whole point of this is, it isn’t easy to live with a child who has disabilities. It is even harder to handle people talking trash about you as a parent, or worse, your child. It is also something I wouldn’t trade for the world. I love my son to no end-he is the apple of my eye. But don’t jump to conclusions when a parent has a child with disabilities that they are going out of their way to be “anti-social”  or rude. Don’t assume we prefer staying in or staying within our families opposed to meeting new people or doing new things.  Don’t blame our parenting for the issues our child faces-we didn’t give him this handicap-he was born with it.

Instead-send that text message or email you’ve thought about sending, it will brighten our day. Call and see how we’re doing-and don’t get offended if we choose not to answer or text in reply instead. Chances are our child is screaming or will if we get on the phone.  Ask to come over, or just drop by and visit. Ask us about our child, try to understand what is going on so when you see our child “act out” or express himself in the one way he knows how, you’ll get it and it won’t be so “annoying” anymore-because you took the time to understand.  Send that note you’ve been meaning to write. Make us a meal once in a while-not because we need you to, but because it reminds us that we aren’t in this alone.

There are a million ways you can show support to a family with a child who has a disability. It doesn’t even matter what the disability is-they all come with their difficulties. But remember-we love our child, we do what we feel is best to help our child and also keep him safe and free of stress, sometimes to our own demise. But we would not, will not, trade it for anything in in the world because,  this child, is our heart and soul.  Yes, having a child with a disability changes a family’s life-but I would like to believe for the better. We will come out stronger, happier, and knowing who our true friends are. No guessing involved. We are the rich ones.

 

Worry Wart

So it is becoming entirely obvious that when it comes to my kids, I’m a worry wart. (and, irrationally protective-if there even is such a thing) This worry is keeping me up tonight. Now I know nothing bad is happening to the kids-they are all snug in bed sleeping. But I’m worrying about how they are growing up, if we are doing the right things, and what is going to happen at E.W.’s tests next week, such as what the outcome will be, or what we’ll do after finding out.

I love my babies to no end and I hate seeing any of them suffer. It is so disheartening on days when E.W. can’t process his feelings or tell us what he wants. And after a day like today, I should be snug in bed sleeping, not sitting here worried about his future. But I can’t help myself.

We already have an idea of what we are going to be told-and to be honest, it isn’t a huge surprise. After a year of trying to get the tests even scheduled, it’s a reality we should be used to. One day things are absolutely normal, the next my little boy has left the building left behind by a screaming child with no ability (or little) to process the world around him. The longer we go without help, the worse it gets. (at least so it seems) I guess, we have our own issues processing the situation we are in.

Being able to share it here has lessened the weight of it all, even just a little. It’s not that I haven’t wanted to share it with our friends and family, but it isn’t the easiest thing to bring up or talk about. We tend to keep our lives personal, not sharing with just anyone. Here, even if you know me, I feel like I’m talking to strangers-it feels like less pressure. I don’t want the whole world (well, rather our little world) knowing we are struggling with E.W. He is my little angel and has the biggest heart. He doesn’t deserve to deal with the things he is, and I hope and pray he gets the help he needs. But until then, I stick to blogging about it, preferring to share it with people (mostly) I don’t know until we have answers or a diagnosis.

It isn’t long now-just a short six days before he has his first set of tests done. Eight until the last are done. It seems like a decade-not a week. It has felt like years, not just a year since I talked to his doctor about what was going on. A year of fighting the school system to get him tested. That last one blows me away because this year they pushed it through without a hitch..

I guess I worry too much, I feel it isn’t enough. But worry isn’t going to get up at 5 with the kids, and since it is now after two, I should probably attempt this thing we all call sleep. Or this mama may just may wake up as Mommy2Tired. Thanks for reading through my rant/vent–your support means the world to me.

And don’t forget to follow my blog! (FOLLOW button is at the top left hand side of the page.)

God Bless!

Sarah

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